Mom on a Mission
name is Helen Smith and I am a Mom on a Mission. I need
your donation to help cure a rare,
yet fatal disease. I’d like to thank you in advance
for taking a moment to read this letter and consider
I said “cure” because the
clinical trials are only a matter of time and money
away according to the research results by Dr.
David Wilcox of the Medical College of Wisconsin.
I founded Glanzmann’s
Research Foundation (a 501c3 organization) to pay
for research towards a cure and promote general knowledge.
the initial capitalization and continued support, Dr.
Wilcox has been able to correct Glanzmannís Thrombasthenia
in human cells in the laboratory environment. (His
full report is available).
that, with recent successes, this worldwide disease can be
cured.† This research
is also working to target other therapeutic agents
to platelets such as coagulation factor VIII to correct hemophilia
and a peptide that may help platelets to resist destruction
with chemotherapy agents used to treat a variety of cancers.
launching our web site (www.cureGT.com)
we have been overwhelmed with both public interest and interest
from the medical community worldwide. Physicians use our site
to learn how to effectively treat this unusual disease. The
public uses it to find hope and blog ways to manage the manifestations
in children and adults that plague their lives.
daughter Julia is diagnosed with Glanzmann’s Thrombasthenia.
The platelets in Julia’s and other GT patients’
blood are missing a protein that is crucial in the clotting
process. Without the protein they cannot form an effective
clot. As a result they are prone to life threatening bleeds
and often are covered in painful bruises and have frequent
nosebleeds. Julia can't walk for extended periods of time
or participate in PE for certain activities because she gets
bleeds behind her knees in the joint. Julia will not be able
to participate in most sports because of the risks involved
with any contact. A normal stomach virus as well as some antibiotics
can and have resulted in life threatening internal bleeds
for Julia. Currently, the only treatment option is to give
platelet transfusions, which is very risky.
is more fortunate than many who do not know how to cope. In
some societies, children can become outcasts. This is why
I say I am a Mom on a Mission.
Help with a Donation
Iíd like for you to help me take the next step necessary
to ensure the Glanzmannís Research Foundation will be successful
in curing GT by the year 2019. My Julia will be 21 years old
by then. She still has the chance to lead a normal life.
Iím taking the Glanzmannís Research Foundation into
the national and international arena so that others will learn
about GT and support our efforts in making GT a distant memory
instead of the reality that it is today.†
I need your financial support to make this happen;
you can make a significant difference towards curing this
disorder. If your company participates in the United Way Campaign
please consider writing in the Glanzmann’s Research
Foundation, because many companies will match your contributions.
We need $50,000 in January 2008. Should you choose
to become the primary sponsor for the Glanzmannís Research
Foundation you will receive credit and recognition in as many
media venues and publications as possible, as well as all
fundraising events that occur in 2008, including the March
1st Casino Night at Sacred Heart Cultural Center
in Augusta, Georgia. We will keep you updated
on our progress towards a cure through monthly updates on
our website.† Of course
any amount that you are able to contribute towards our goal
of $50,000 will also be recognized accordingly and greatly
GT will be cured, and with your help, it can be cured
in as little as 10 years!†
Imagine playing a part in the cure of GT. At one time,
the world lived in fear of polio, small pox and other diseases.
Today, they are rarely mentioned. You will be contributing
to wiping GT off the face of the earth, so we can live without
fear of this disease.
I invite you to our website, www.CureGT.com, to discover the effects of the
disease worldwide, and to learn more about this rare disease.
Iíve also included a link
to a news article about our recent trip to Washington, DC
where we met with George W. Bush.
call me. I will meet with you in person. Perhaps you know
others who can support this and I will personally introduce
myself to them as well. Right now I am only one person but
with your contribution I hope to get others involved in the
fund raising effort.